Tuesday, September 15, 2009
Yesterday we went to the neurosurgeon for a follow up and got great news. Suzie's head size has decreased a tiny bit from the last visit and her head size has now gone from the 80th percentile to the 50th! Her shunt seems to be working well and we are so grateful for a good report. Here are a few recent pics of our family. Thanks for keeping up with us!
Suzie playing with her friend Kaitlin at a High School Staff meeting.
Suzie has her very first cold right now:( The only thing that will comfort her at night when she's all stuffy is being with momma. Needless to stay we have had a rough few nights.
Suzie in a box!
Trying to escape:)
Chilling with mama
I wonder what she's up to...
Daddy bringing the Word!
She looks like such a big girl when she's kneeling!
Suzie's new thing is to make this very funny face every time we try to take a picture of her. She does it as soon as she sees the camera. The good pictures above are hard to get now! Here are several shots of her funny face.
Total for 4 with tax: $43.86
What I paid:
Sale price $4.99
with $4 off $20 purchase from CVS
and four $4 off coupons for the Freshmatic
from the paper and internet
My Total: $1.90
And since I had extra care bucks, I really got them for free:)
Tuesday, September 8, 2009
I am so often looking at other babies Suzie's age and am so amazed at all they can do. They so easily flip around from sitting, to push themselves onto their hands and knees, to crawling, back to sitting, to standing, to cruising, back to sitting, etc. They are super flexible and make all this moving around look so easy. For Suzie, these things that most babies just naturally learn to do are a huge challenge for her. Her therapists spend hours a week trying to just get her to tolerate staying on her hands and knees. Getting her to just keep her hands open has been an obstacle. I'm sure most parents are so proud of their babies any time they learn a new trick. But for people who have children with any kind of disability or delay, I think we get proud at even the smallest bit of progress, because for these kids, the small things are really huge!! I have just been so incredibly proud of my little girl lately. She is so expressive, curious, and learning so much all the time. I am proud that she is starting to stick her little tush in the air when she army crawls. I'm proud that she throws things with both hands now (although it’s usually inadvertent with her right hand). I’m proud every time she grabs for something with her right hand. And I’m so proud that she has now begun signing “more” when she wants more of something! Suzie is a little miracle, a precious gift from God. The doctors told us that she would be moderately to severely mentally and physically disabled due to the extent of the brain damage that she has suffered. So we are so thankful to God for His grace in allowing her to progress so much, and so proud of her for every little new thing she does.
Here is a little video of her with her latest trick.
I also want to make a quick mention of how proud I am of my wonderful husband. This weekend we went to San Diego as Kyle was the guest speaker for a retreat for a small church in Cerritos. He spoke on how we need to use spiritual disciplines for victorious Christian living. He did such a wonderful job and was such a blessing to the people. We had a great time as a family and I'm so thankful that God gave me such a wonderful husband and Suzie such a great dad!
Tuesday, September 1, 2009
Suzie is doing very well! She is sitting up much better and I can finally leave her alone while she is sitting. She still hates it so most of the time she gets out of it fairly quickly. She can use her left hand to help her get out of it and when she falls to the right side she just kinda rolls out of it. She is now getting 5 hours of therapy each week which is keeping her busy, but I think it is helping her improve quicker. She has become a pro at combat crawling and will leave the room when I'm not looking:) She says, "Ma Ma" sometimes for me and "Ma ma ma" for more. She says "Da Da" for Kyle sometimes too. She is laughing a lot and usually in a good mood as long as she gets her nap. We think she's teething right now so sleeping at night is a little tricky. Hopefully that will pass soon!
Here is a little video of her sitting and smiling at Mommy.