Tuesday, December 30, 2008
Monday, December 22, 2008
The first several weeks of Suzie's life, while she was in the most critical condition, people would always ask us if we ever struggled with asking God why...why us? This morning I found myself asking God why...why would He choose to bless us so much? Suzie has come so far and has exceeded all of her doctors expectations. As we have dear friends whose children are still in the hospital and one family that had to say goodbye to their little girl not too long ago, we see that God has shown us so much mercy and blessed us more than we could have ever even asked for. We praise Him for what He is doing in our lives through our little girl and for showing us what a privilege it is to be a part of His body.
All that to say, Suzie is doing very well:) She weighed in at 9 lbs. 11 oz. on Friday...almost 10 pounds! She is just a few days past her five month birthday. Per the doctor's recommendations we are still going to keep her from large crowds through the cold and flu season. But she is enjoying going to people's homes and having visitors come over. She is such a people person and just loves to be held...all the time:) She naps better on the sofa than she does in her crib and can sleep 7 hours at night before I have to wake her to eat. She is constantly putting her hands in her mouth, is tracking much better with her eyes, and getting a lot better at lifting her head. She is cooing up a storm and laughs on occasion. I think that we tell her how cute she is at least 20 times a day. She is one loved little girl. Here are some of her most recent pictures...my favorite is the one of her with daddy.
Thursday, December 11, 2008
The good news is that I really like Suzie's new pediatrician. She is located in Pasadena right by Huntington Hospital. We picked her because we wanted to be able to go to all the same specialists. The doctor was very friendly and seemed very knowledgable. She took the time to sit down and get to know Suzie's situation and had several recommendations for us. She is going to refer Suzie to a pulmonary specialist to follow up on her need for oxygen while she is feeding. She even called me personally this morning to let me know that all of Suzie's blood work was good! So I'm so thankful to have a reliable pediatrician for our little girl.
Here is a fun video of a happy Suzie...as I type this I have a not so happy little girl needing my attention:)
Tuesday, December 2, 2008
Other than that, our sweet girl is doing very well. We had a great first Thanksgiving with her and everyone enjoyed taking their turn to hold her. One of the best things is that Suzie laughed for the first time on Saturday! It was a very short little giggle and if I hadn't been looking at her expression I wouldn't have known it was a laugh, but she did it two more times on Sunday. She smiles a lot too, although Daddy says not often enough for him. She is starting to be awake for longer periods during the day, which is very fun (except for the past two days). She has many fun expressions and we pretty much just dote on her all day long.
We try out our new pediatrician on Monday so hopefully that will go well! Here is a video of our happy girl.
Monday, November 24, 2008
The occupational therapist came to do an evaluation last week. She said that Suzie is developmentally tracking like a 2 1/2 week old baby. Her corrected age is six weeks so they would like to work hard at closing the gap while she is still so little. So they have recommended 2 hours of physical therapy, 2 hours of child development, and 1 hour of occupational therapy every week. With 5 hours of therapy per week we are going to be quite busy! But we are so thankful for this service provided by the state. Two of the three therapists will come to our home to work with her and they said that we can cut back on hours if it gets to be too much. We have to wait for the regional center to approve the hours so hopefully we will be able to get going in three to four weeks.
Also, we went to the ophthalmologist on Saturday and he said that her eyes responded very well to the laser surgery so that is a praise. He doesn't need to see her for another two months!
Everything else is going well for us here. Suzie has some great nights where she will go six hours between feedings. I love those nights:) She has other nights, like last night, where she cries until 4am. But we praise God for a healthy (and usually happy) little girl home with us.
Tuesday, November 18, 2008
Weight: 8lbs 2oz
Length: 21.5 inches
Head Circumference: 14 inches
Suzie is doing great! She received her four month immunizations which was a very sad thing. She cried and cried and has been conked out on the couch ever since. The doctor said she is a little behind on her weight gain so I'm going to work on trying to get her to eat a little more each feeding. If she does well with that, then he said I can go ahead and let her sleep up to 7 hours a night. The past four nights she has slept for 6 hours straight and I had to wake her to feed her. It is a wonderful blessing to get a little more sleep, so hopefully she will keep it up and still be able to gain weight. She is such a sweet and content little baby, except for her brief fussy time each day.
Our follow up with the eye doctor is tomorrow morning so we'll post another update then!
Friday, November 14, 2008
Another praise is regarding our friends Justin and Victoria. Their baby, Moriah, had a critical heart surgery today that was so risky, they had to go all the way to Stanford to even find a doctor willing to do the operation. God is so faithful and allowed Moriah's heart to be healed today. You can read their encouraging story here.
Wednesday, November 12, 2008
Tuesday, November 11, 2008
On another note, Suzie's surgery will most likely be on Friday. We'll let you know when we have more details!
Thursday, November 6, 2008
On a positive note, our appointment with the Neurosurgeon went great! Suzie's shunt is working well and she is past the risk of infection. He also informed me that he placed enough tubing in her that she will not need any sort of revision unless her shunt malfunctions somewhere down the line (which is a definite possibility). But we are so thankful to God for how well our little girl is doing.
Thanks for keeping up with us! We are so blessed:)
Sunday, November 2, 2008
Then on Saturday night, Suzie attended her very first Texas Tech football party! This was her first outing other than our daily walks and regular appointments. Our friends Bryan and Lindsay Payne threw a great party at Chad and Carly Brannon's house to watch the big game where No. 7 Tech played No. 1 Texas. It was a very exciting game and even better because Tech won! Lindsay threw a great party with a tortilla throwing contest, a Texas helmet pinata, and Suzie won the most spirited outfit award. She did great on her first outing and only cried a few times when the cheering was especially loud:)
Other than that, Suzie is doing very well and enjoying her life at home. She is eating a ton and growing bigger by the day. Here are a few more pictures of our Suzie-Q.
Next week is a busy week for us. On Tuesday we go to the eye doctor, Wednesday to the Neurosurgeon and Thursday back to the pediatrician. We'll let you know how everything goes!
Friday, October 31, 2008
Sunday, October 26, 2008
Thursday, October 23, 2008
We were having trouble getting her to drink her bottles for a while. She would only take 1/2 to 3/4 of each bottle we offered her. I was getting concerned about her weight gain, but we went to the pediatrician on Wednesday and she had gained 7 ounces in just four days! So she is doing fine on her weight gain. Everything else looked good too. We realized later that day that the reason she isn't drinking very well is because she doesn't like all the things they were having me add to her milk to help her weight gain. I have been adding a teaspoon of formula, a teaspoon of rice cereal, and a dash of vegetable oil. Once I stopped adding these things she drinks a lot more milk and very quickly! So we are so glad that she is able to drink much better now.
Suzie has enjoyed spending time with both of her Grandmas...even though neither of them would prefer to be called, "Grandma" :)
Nana was able to visit her from Kansas this past week
and Mema is able to come by and visit several times a week
We enjoy putting her in her swing...but she doesn't always care for it
One of her favorite things is to be able to spend more time with Daddy now that she is home
Suzie has learned to roll onto her side so I had to put the wedgie in the crib to keep her from rolling over. As you can see, it didn't really do much good:)
Here's a little video of our girl in her swing
What a joy this past week has been with our precious Suzie finally home with us! We praise God for bringing her home to us so quickly and so healthy! How merciful He is to us.
Saturday, October 18, 2008
Three months ago our precious little girl entered the world. Yesterday, she entered our home for the first time! We spent most of the day on Friday getting prepared for her here at home. We had hoped to bring her home that night, but there were a few snags in trying to nail down her pediatrician. So Saturday morning we headed off to the hospital where we packed up all her stuff, met with the nurse and doctor, and headed home with our baby girl! It was her first time to be outdoors...unless you count when she was transferred from Glendale Adventist in an incubator the night after she was born. She was an absolute angel in the car and slept the whole way. She pretty much slept all day yesterday, except for her feeding times. Kyle seemed to think that she is going to be this sweet and content all the time…and then last night happened. Our little Suzie decided that night time was a good time for awake time. She kept us up until about 4:00am, and then I still had to get up every two hours to feed her. Needless to say, we are both very exhausted…and only after one night! But it’s so worth it to have our sweet girl home with us.
Aside from needing oxygen during her feeds, she really seems like any other newborn baby. Because she still has a little bit of lung disease and is more suseptible to infection, we will not be able to take her out into a crowd of people for a couple of months. It will be very hard for me to stay mainly in the house for that long, but it is a privilege to be able to make sacrifices for our precious little girl.
It is so much fun to have her here with us and we praise God for how far He has brought her in the past three months. Thank you all for your faithful love and support for us!
Here are a couple of short videos of us leaving the hospital and some pictures of her at home:)
Thursday, October 16, 2008
1. Kyle is so passionate about Christ and His Word
2. He loves people more than anyone else I have ever known
3. He makes me laugh
4. He spures me on in love and good deeds
5. He loves to teach God's Word
6. He is a true shepherd of God's people
7. He sees God's faithfulness in every situation
8. He is such a hard worker
9. He takes his responsibilities very seriously
10. He is so humble (by God's grace!)
11. Kyle is compassionate
12. He is quick to forgive
13. He is quick to ask for forgiveness
14. He loves to pray and read God's Word
15. He always want to be growing
16. He is a good listener
17. We have so much fun together!
18. He is above reproach
19. He is so tender with his little girl
20. He is very sacrificial
21. He is always thinking about furthering God's kingdom
22. He loves to meet people's needs
23. He expects nothing in return
24. He is faithful
25. He loves to bring joy to people
26. He is very generous
27. He is a great leader
28. Kyle is my best friend
I love you so much, Kyle! I praise God for bringing you into my life three years ago. I love being married to you and I can't wait to see what the Lord has planned for us in the future. Happy Birthday!!
Wednesday, October 15, 2008
Another big step for Suzie is that they started to offer her a bottle for every feeding! They decided they would let her take as much as she wanted without wearing her out and then give her whatever she didn't drink through her feeding tube. I just got off the phone with the nurse and they have removed her feeding tube because she has taken the last 8 full bottles in a row! This doesn't mean they won't have to put the tube back in later, but it is wonderful that she has been able to take so many in a row.
Our doctor is pretty confident we will be able to bring her home some time before November, which is just two weeks away so we are thrilled! Kyle and I are having so much fun with our precious little girl and can't wait until we don't have to say goodnight and leave her any more. God has been SO faithful to us. I sing the song, "Great is Thy Faithfulness," to Little Suzie every day so that I am constantly reminded of His goodness and grace toward us.
Thank you for continuing to follow us through this journey!
Monday, October 13, 2008
Please continue to pray for her development and for us to trust in the Lord and be patient. We heard an excellent sermon from Nathan Busenitz in church yesterday. He was talking about how our hope can only be in God during the financial uncertainty that our country is facing. Kyle and I both applied this to our situation right now and it was a great reminder that we can only hope in God during this uncertainty with our little girl. He is in control of every detail of our lives and we can hope in His wisdom and goodness!
We're pretty much ready for her here at home. Here are some pictures of the nursery that awaits her...
Friday, October 10, 2008
Weight: 6 lbs 2 ounces
Length: 20 inches
Head Circumference: 13 inches
Weight: 1 lb 14 ounces
Length: 13.5 inches
Head Circumference: 9.5 inches
She has grown so much! As we posted yesterday, Suzie was able to come off of oxygen on Wednesday morning. This was a very exciting day for us, as we were prepared for her to have to come home on oxygen. There is still a possibility that she would have to go back on it, but the fact that she has been off of it for two full days now is very encouraging. Sometimes she gets so fatigued from eating that she requires a little help from the blow-by, but even that has been very infrequent.
Also, she now can take two bottles in a row, but will be a little too tired for a third bottle. She has come so far in the past week and a half with her feeds. A week and a half ago she drank her first full bottle for the first time and now she can take 6 full bottles a day, so we are seeing tremendous progress with our little girl! She also is awake for a lot longer in the day so we are having so much fun with her.
The doctor still won’t give us any estimate as to when we can expect our little girl to come home with us, but our Occupational Therapist warned us that they might not let us know until the day before she comes home! She told us to expect that she might be able to come home in the next week or two. :)
We praise God every day for his kindness to us. Suzie is truly a constant reminder to us of how gracious the Lord is and how He gives us far more than we deserve. We desire to live every day in complete surrender to the Lord, always aware of His constant faithfulness.
Thursday, October 9, 2008
Well, everyone seemed to notice right away that Suzie has no tubes in her nose any more! The exciting thing is that she came off oxygen yesterday. But we did want to clarify that she is still receiving food from her feeding tube for every third feeding. They were changing the tube here so I got to see her with no tubes on her face for the very first time! I'll post some more details tomorrow:)
Saturday, October 4, 2008
Regarding her oxygen, she is now on the lowest amount of flow that she can be on, with her oxygen around 30-40%. It's a small catheter that only goes in one nostril. We are still very aware that she might come home on oxygen, but she is making small steps in the right direction.
She is beginning to be awake for longer periods of time throughout the day, which is very fun for us. Sometimes she is pretty fussy, but other times she is just wide awake and content and looking all around. She smiles all the time especially when we sing to her. She loves to be held so I spend most of the time that I am there holding her in my arms and rocking her.
Her shunt is still working very well and a recent ultrasound shows that her ventricles have dramatically decreased in size! She now is just under 6 pounds and over 19 inches long! I can hardly believe she is the same baby. It is getting harder and harder for us to leave her each night. Everything is coming together in her nursery here at home. We are praying that the Lord would allow her to come home some time this month.
Please continue to pray for her progress and for us to continue to depend on the Lord for everything. We have so much to praise God for.
Thursday, October 2, 2008
How grateful we are for the body of Christ!