Suzie had a great day yesterday. Her breathing has been getting better, so they decided to take her off of oxygen again, only this time they will put her back on oxygen every time she eats because that is what wears her out. She has been doing well with that for the last 24 hours and so we hope that when she comes home, she will be able to only require the oxygen when she is eating. It would give this momma a little peace of mind to have the oxygen near by when we bring her home anyway:)
Another big step for Suzie is that they started to offer her a bottle for every feeding! They decided they would let her take as much as she wanted without wearing her out and then give her whatever she didn't drink through her feeding tube. I just got off the phone with the nurse and they have removed her feeding tube because she has taken the last 8 full bottles in a row! This doesn't mean they won't have to put the tube back in later, but it is wonderful that she has been able to take so many in a row.
Our doctor is pretty confident we will be able to bring her home some time before November, which is just two weeks away so we are thrilled! Kyle and I are having so much fun with our precious little girl and can't wait until we don't have to say goodnight and leave her any more. God has been SO faithful to us. I sing the song, "Great is Thy Faithfulness," to Little Suzie every day so that I am constantly reminded of His goodness and grace toward us.
Thank you for continuing to follow us through this journey!
2 years ago