Friday, March 26, 2010

Prayer Request

Okay, okay. I know that I have not been faithful to blog since we moved. We opted to save $50/month by not getting internet in our home since the church is just steps away. However, it does make blogging, emailing, and other internet functions much more difficult. I do have a few new pictures and videos to post but Suzie is going to wake up any minute and I need to let Kyle get back to work. However, I did want to post a prayer request while I have a few minutes.

I took Suzie to the eye doctor on Tuesday for a bi-annual check-up following her laser eye surgery. (On a side note, our appointment was at 8:45am so I naively assumed we would be able to make it to Suzie's 10:30am therapy, or at least her 11:00am session. Not the case. We finally left the office around 12:30pm. Officially goes on record as Suzie's longest doctors appointment to date. And she has had a lot!) Anyway, the good news is that there are no concerns about her ROP at this point meaning the surgery did exactly what it was supposed to do. The sad news is that the doctor is concerned that she might not be using both of her eyes properly. We have noticed for some time that that occasionally it seems like her eyes are looking a slightly different direction for just a moment. We really didn't have too much concern because it is so subtle and she seems to see everything just fine. But the doctor thinks that her brain might be shutting off one or both eyes for a time. He asked us to pay attention to try to determine if it is one eye or both eyes and the frequency it occurs. He wants to see her in five weeks to see how she is doing and mentioned the possibility of patching one eye or even doing muscle surgery on one or both eyes. After watching her more carefully for the past few days and getting her therapists perspective, it seems like her left eye is the eye that is affected. 75% of the time, she is looking with both eyes correctly, but the other 25% of the time, her left eye will drift a little too far to the left and have to correct itself, which it does after only a second. The therapist suggested that her left eye is just slightly less controlled and is more affected when she is tired. The prayer is that we would be able to get her to strengthen her eye muscles without surgery. Please continue to pray for our family!

Another prayer request would be how the new health care reform is going to affect Suzie, and of course so many others! It has been a good week for me to lay my requests before the Lord and know that He is in complete control over every detail of our lives, even our government. He has provided amazingly for our little Suzie thus far and we can trust Him to continue to do so. Suzie is on medicare so there is concern that she might lose her insurance all together, and if not, most likely she would lose the amazing coverage that she is getting especially in regards to therapy. There is a also a concern that should she have a shunt malfunction and need emergency surgery, she might not be able to be treated in a timely manner. These are the specific requests that we are bringing before our God right now even though much of this may not be an issue for several years. Of course we are also praying for all the unborn children as well as the elderly and many others. We are so thankful that we can trust in a good, sovereign, loving and omniscient God in these times! Thank you also for your prayers!

5 comments:

The Timmons Family said...

We will be praying!! I check your blog regularly and I'm so sad to hear about little Suzie's eyes...we will pray for muscle strength and insurance! Suzie's dance moves are awesome! I can't believe how well she is talking...so encouraging to watch! Love you guys!

Pastor Rudy Kronst said...

Glad to hear from you - looks like all is going Great - keep in touch - blessings. we remember you in our prayers. Chaplain Rudy - Hunington Memorial Hospital

Ginny said...

I am not an opthamologist, but my 16 year old son has a similiar problem where his right eye turns in occasionally when he looks at things up close. When he was in second grade he noticed it as he was learning to read, and was seeing double. He wore bifocals for a few years to help him. He still has it happen occasionally if he is tired or his precription has changed and he needs new glasses. Surgery was never needed and I doubt Suzie will need it since it is intermittent. Do a online search on intermittent strabismus, this site also has info http://www.strabismus.org/intermittent_strabismus.html It sounds like this is what she has. Hopefully it can be helped with patching or glasses, so please don't spend alot of time worrying about surgery! PS You don't know me, but I have been reading your blog for some time, so long that I don't even know who linked me to you! Best Wishes

Kyle, Steph, and Suzie said...

Timmons Family, Pastor Kronst, Ginny, and Others,

Thanks so much for keeping in touch with us through our blog. We appreciate your support and prayers for our family. We are so thankful to our mighty God for all of the people we have "met" through the difficult circumstances that Suzie has gone through. Thank you again for caring for us.

Kyle & Steph

The White Wave said...

I will be praying for your little red-headed beauty, as well as for the entire population of the country.