Suzie had a follow up appointment with the eye doctor last Tuesday. We felt like the few days preceding the appointment, her eyes had gotten a little worse. The eye doctor immediately saw the issue, diagnosing Suzie with exotropia. Most likely a result from her cerebral palsy, her eyes tend to drift outward, the opposite of cross-eyed. He noticed it in both eyes, although the right eye is stronger than the left one. So he recommended we start patching her eyes for two hours a day. We patch the right eye for two days and then the left eye for one day, and repeat for the next three weeks until we see him again. I was a little skeptical that Suzie would even tolerate the patch, but she does so well! She cries when I pull it out, and will rub it sporadically, but she leaves it on and just gets caught up in playing. I'm so proud of her! I think part of it is that she really doesn't like the way it feels when we pull it off, so she's not in a hurry to remove it herself. I feel like her eyes are already getting better, although she still struggles the most when she is tired. But I am hopeful that this will resolve the issue and she might not need surgery. Here are a couple of pictures and a short video of our little pirate!
The day before her eye appointment we went to meet her new neurosurgeon in Midland. He was very personable (who knew a brain surgeon could be sociable!) and recommended we come back every six months until she is five years old. If I am tempted to be discouraged about Suzie's eyes and how she has another possible surgery looming in her future, I just need to remember many of the children I saw come in and out of the neurosurgeon's office. Many of them in wheelchairs and/or unable to speak or do anything for themselves. God has been SO abundantly merciful to our little girl and to us and we are extremely grateful for how well she is doing. Praise the Lord!
2 years ago